So the next step was to organise a demonstration, protest, call it what you will. Raising public awareness to something that is killing 10,000 men a year in the UK seemed on balance, a good idea. Highlighting our hospital as somewhere that you will get an inferior experience to that of many other hospitals in the country would be an added bonus.
I even told the hospital of my plans and assured them that it would be peaceful and polite!
THEN.....This horrible letter arrived recorded delivery today...
And at the end they tell me that they monitor the content of my blog!!!!!!!!
"If your Blog contains anything that is not factually correct or which contains unsubstantiated criticism of the care you received..."
"...the Trust will have no hesitation in taking legal action against you".
So my thousands of followers are now aware that 'Big Brother' is not just a TV programme.
Can you believe, they would spend vast amounts of money, employing a legal team to shut me up, and a persons wages to 'monitor my blog', rather than go through the simple low cost process of improving the patient experience in one department of their hospital?
My reply was this.....
So if I wake up tomorrow and my Blog has gone, then you will truly know the power of the NHS.
What should North Cumbria University Hospitals NHS Trust do?
They should send a team of people, nurses, doctors and administrators, down to Addenbrookes Hospital near Cambridge, a world renowned hospital for the treatment of Prostate Cancer, where I was lucky enough to be treated. They should come back armed with the knowledge of 'What to do' from the very first moment a patient is referred to them. Because, when Helen Kelly (NHS Trust) came to our Support Group meeting, only 1 out of the 25 people present were happy with their patient experience to date, and that is just NOT good enough!