Well I've had some very bad days and some not so bad says since the 18th June when I was first diagnosed, but TODAY HAS BEEN A VERY, VERY GOOD DAY and it all started last night with a call from Mel, the Macmillan Nurse at Carlisle Hospital. For the first time since my MRI scan and MDT meeting, someone was able to sit down, look at it all and talk me through it.
On one side of my prostate the tumour was very small and fairly central. On the other side the tumour was larger but not really well defined yet, and again fairly central. 'Central' is important, because that means the tumours are not near the outer covering of the prostate capsule, so they are not going to cause a 'break out' any time soon. This gives me time to decide on the two options that I have short listed now. It also means they are not near the nerve bundles which could be damaged if I have surgery, causing some problems with continence or potency. This was just fantastic but it was also information that was available 7 weeks ago that nobody relayed to me. I feel a little bitter about that but it is just insignificant as to how relieved I feel right now.
I went to see my doctor this afternoon after writing the following letter to her..........
Also told that the main guy at Newcastle who did this surgery had moved to Dublin!
Phew I can go to bed happy tonight!